A Life Beyond Reason: A Father's Memoir

A Life Beyond Reason: A Father's Memoir❴EPUB❵ ✰ A Life Beyond Reason: A Father's Memoir Author Chris Gabbard – Heartforum.co.uk An unflinching and luminous memoir that explores a father s philosophical transformation when he must reconsider the uestions what makes us humanand whose life is worth living Before becoming a father An unflinching Beyond Reason: MOBI ð and luminous memoir that explores a father s philosophical transformation when he must reconsider the uestions what makes us A Life Kindle - humanand whose life is worth living Before becoming a father Chris Gabbard was a fast track academic finishing his doctoral dissertation at Life Beyond Reason: PDF Î Stanford A disciple of Enlightenment thinkers he was a devotee of reason believed in the reliability of science and lived by the Life Beyond Reason: A Father's Epub / dictum that an unexamined life is not worth living That is until his son August was bornDespite his faith that modern medicine would not fail him August was born with Life Beyond Reason: A Father's Epub / a severe traumatic brain injury as a likely result of medical error and lived as a spastic uadriplegic who was cortically blind profoundly cognitively impaired and nonverbal While Gabbard tried to uncover what went wrong during the birth and adjusted to his new role raising a child with multiple disabilities he began to rethink his commitment to Enlightenment thinkers who would have concluded that his son was doomed to a life of suffering But August was a happy child who brought joy to just about everyone he met in his years of life and opened up Gabbard s capacity to love Ultimately he comes to understand that his son is undeniably a person deserving of life A Life Beyond Reason will challenge readers to reexamine their beliefs about who is deserving of humanity.

Is a Beyond Reason: MOBI ð well known author some of his books are a fascination for readers like in the A Life Beyond Reason A Life Kindle - A Father's Memoir book this is one of the most wanted Chris Gabbard author readers around the world.

A Life Beyond Reason: A Father's Memoir PDF Ø Life
  • Hardcover
  • 240 pages
  • A Life Beyond Reason: A Father's Memoir
  • Chris Gabbard
  • 07 October 2014
  • 0807060577

10 thoughts on “A Life Beyond Reason: A Father's Memoir

  1. Olga Malosh says:

    This book is a beautiful account of a father s intellectual and spiritual journey Existential questions about life s meaning are thoroughly explored through a prism of a non believer and a rational thinker Chris s brilliant storytelling sets a page turning cadence I was instantly hooked by the bursts of factual information followed by reflective and deeply philosophical analyses I read the book from the perspective of someone who met the author s family The acquaintanceship didn t form o This book is a beautiful account of a father s intellectual and spiritual journey Existential questions about life s meaning are thoroughly explored through a prism of a non believer and a rational thinker Chris s brilliant storytelling sets a page turning cadence I was instantly hooked by the bursts of factual information followed by reflective and deeply philosophical analyses I read the book from the perspective of someone who met the author s family The acquaintanceship didn t form on any specific date When living in San Marco area I used to drive by the author s house daily On a couple of occasions I caught a glimpse of August using a Rifton device to walk along the driveway with the assistance of a caregiver Comparing the timeframe of my living in the neighborhood with that of the events from the book, it would have been the time before the Relaxanoid pump was implanted in August A few years later, my 13 year old daughter would tell me that on her early morning runs she always waved at Clio s mom who walked the dog along the duck pond This would have been after August s death when the family welcomed the emotional support of a dog I vaguely remember assuming that Clio was a girl either from my daughter s school or the ballet studio Just this past year my daughter was part of the ballet performance where Clio danced in the main role and I finally realized that it was Clio whose mom my daughter waved at during her morning runs At that time I still had not known anything about August Several months later, my husband and I found ourselves at a ballet fundraiser socializing with the author and his wife In a conversation about post graduate education and Chris s teaching career at UNF, the story of August came up in a context of his upcoming book At a loss for words to express my sympathy and admiration for Chris s and Ilene s strength and poise, I uttered I cannot even imagine Now after reading the book, I sincerely hope those worlds didn t come across as anything but the expression of deep compassion So tenderly and lovingly written, the book offered an enriching experience for me As a non believer myself, the subject of life s meaning has always lingered in my thoughts Following Chris s initial logical approach aligned with Enlightenment movement was like traveling a familiar path but now with an articulate tour guide who pointed out new surprising nuances Chris s turbulent and complicated search for a meaning of August s life led him to self discovery and personal growth where the path of logic and reason proved inadequate Chris mentions Socrates s quote, The unexamined life is not worth living and implies that some may argue that a severely impaired individual s life is not worth living The quote always presented me with a problem which Chris has visited throughout the book What level of ability cognitive, physical, emotional, etc of an examiner is sufficient in order to examine life While in a state of conflict between the rationality on the one hand and overflowing love and affection on the other, Chris recognized the deficiency of the logical approach and accepts that the spirit dwells in everyone

  2. Bryon Butler says:

    Chris Hubbard s A Life Beyond Reason was a serendipitous choice for me I was at the library to retrieve a book on hold and walked out with two books I ended up reading this one in a few days while the other sat untouched.Hubbard s memoir of the short life of and full attention to his son August, afflicted with cerebral palsy, impacted me on different levels It is filled with literary references, and shows a wide reading of medical literature As a resident of Jacksonville, Florida, also with Chris Hubbard s A Life Beyond Reason was a serendipitous choice for me I was at the library to retrieve a book on hold and walked out with two books I ended up reading this one in a few days while the other sat untouched.Hubbard s memoir of the short life of and full attention to his son August, afflicted with cerebral palsy, impacted me on different levels It is filled with literary references, and shows a wide reading of medical literature As a resident of Jacksonville, Florida, also with Hubbard, I read of places he d been that I d visited, and of the city s growth around the St John s river Due to the book I ve now visited Craig Creek, and the Phillips Cemetery I grew to appreciate his marriage, which grew stronger as the couple, also raising a daughter not afflicted with illness, continually faced financial ruin, saw their careers stall, and lived lives of physical and emotional exhaustion serving August and labyrinth ing through the modern medical establishment Medicine in Hubbard s book becomes its own character, a possible archetype of both good and evil in the Enlightenment worldview that the author lived I was touched by the many friendships that developed between the Hubbards and the numerous caregivers that passed through their home through the years, and was taken aback at the amount of hospital time August needed to receive to continue life.Key throughout is the author s deep belief in the secular Enlightenment worldview and how a life with August enabled him to see a deeper life, one containing mystery and a depth that went beyond modernity His interaction with Peter Singer, and his review of Enlightenment thought via Foucault were powerful Hubbard ends A Life Beyond Reason as a seeker, where atheism can no longer be a belief after being exposed to the concept reality of grace The book also succeeds in that it doesn t force the family s story into an arc of resolution For his wife August s death was a laceration in time, and no healing could ever occur page 201, 2019 hardback edition Hubbard recounts his review of August s medical papers, with little satisfaction A family friend, whose son took his own life, recently posted how, if she could, she d go back and do about a thousand things differently I can t touch this type of familial pain, one akin to the Hubbard s It s a service to the reader that anguish follows through the final chapter And yet most impacting to me was the love that developed between Chris and August, one filled with dedication, one that became transcendent as the father felt he could see God through the eyes of August It was not pointless, but was enlightened It s the story of a father who wrote to recover from those years, yet continues to embrace the story as it made him human in ways he could not have known had he remained untouched

  3. Beth Withers says:

    I approached this book a bit differently than many because I teach high school students very much like August My students are all nonverbal and have severe and profound intellectual disabilities and many have physical and medical challenges also My niece also has a daughter with similar challenges who is 9 and lives around the corner from me, so I have a family perspective also I was very excited about reading this book, and for the most part it didn t disappoint Because of my background, ho I approached this book a bit differently than many because I teach high school students very much like August My students are all nonverbal and have severe and profound intellectual disabilities and many have physical and medical challenges also My niece also has a daughter with similar challenges who is 9 and lives around the corner from me, so I have a family perspective also I was very excited about reading this book, and for the most part it didn t disappoint Because of my background, however, I wanted to hearabout handling the day to day living with August and how they handled different situations I did not particularly want to read about the attempts to sue doctors and facilities in such detail That got a bit tedious at times It was actually rather frightening to read of all the mistakes made not only in August s birth but in his treatment, and it has not increased my faith in the health care industry All of the errors and lack of competence was surreal at times I learned that there are actually people who support child euthanasia, a disturbing thought in light of my job and something I have not encountered in my career, thankfully What I did love so much about the book was reading of loving parents who supported their son, made sacrifices for him, and found joy in being with him If you haven t spent time with these young people, you have missed an incredible experience There are well meaning adults, even in education, who assume these students cannot learn and who feel sorry for them I will set anyone straight these young adults can and do learn, and they love life and experience it to the fullest They have taught me many lessons over the years about love and acceptance and wonder and joy Gabbard has done a good job of giving a parent s perspective, and I would recommend it to anyone I received a free copy of this book from LibraryThing in return for an unbiased review

  4. Arion Williams says:

    I once read a book by Meg Jay, Supernormal that had me emotionally and psychologically prepared for this read From the outset, I could tell the Father was going to be a character that I d completely understand, at times, and at others, question everything he was doing A father myself, I was awestruck with the demands on his, and his wife s, time He easily waved his hand at the sleepless nights, the constant crying, the surgeries, the consecutive hospital stays This family was remarka I once read a book by Meg Jay, Supernormal that had me emotionally and psychologically prepared for this read From the outset, I could tell the Father was going to be a character that I d completely understand, at times, and at others, question everything he was doing A father myself, I was awestruck with the demands on his, and his wife s, time He easily waved his hand at the sleepless nights, the constant crying, the surgeries, the consecutive hospital stays This family was remarkable In the end, it s easy to question his train of thought, why he decided to subject his son to so much and so frequently As a parent, we are always justifying why we do what we do for our children Normally, people say, have you ever consulted the kid and asked how what they feel about a situation When your child is non verbal, you re left to TRY and think, what WOULD they want me to do for them Just the thought of that is crushing While trying to provide his disabled son every opportunity for a normal life, he may have possibly been the cause of shortening it And for the Meg Jay reference, the story that is less often told are the siblings of special needs children There was a second child in this story that was completely overlooked because there wasn t enough time space for her needs and her cerebral palsy strickened older brother Meg Jay puts them at the fore and shows how resilient the siblings have to be just to survive in a household like that When I read this story, my eyes watered for the parents in their predicament AND for the baby sister that had a very traumatic childhood with her needs being sort of an afterthought

  5. Ruth says:

    As the parent of a child with disabilities, I identified very emotionally with this book This family s story should serve as a cautionary tale for families of young children with disabilities just beginning this journey through this new life, particularly those with children who need a lot of medical intervention Parents should never underestimate the potential destructiveness and self interest of the medical establishment and the medical pharmaceutical industry that is in bed with them The As the parent of a child with disabilities, I identified very emotionally with this book This family s story should serve as a cautionary tale for families of young children with disabilities just beginning this journey through this new life, particularly those with children who need a lot of medical intervention Parents should never underestimate the potential destructiveness and self interest of the medical establishment and the medical pharmaceutical industry that is in bed with them They should be forewarned that their child s medical professionals may have motivations that have nothing to do with their child s health or quality of life Even as smart, informed, worldly people, this author and his wife found it very difficult at times to successfully advocate for their child.But beyond that, this book is about understanding what makes a human life precious and valuable and worth having and knowing in one s family and life This author s description of his awakening in that regard is lovely and heartfelt, and one I experienced with my own precious child Those words of his spoke to my heart.In practical terms, I found some of his many literary references unrelatable and perhaps a little pedantic But I excuse that because it is his background, and it was important to his framing what happened in his life in an understandable way.A good read that made me cry, which is always a pretty good measure for me of how good a book is

  6. JJ Grindstaff says:

    I recommend that everyone read this touching depiction of a father and son relationship unlike any you ve experienced before Gabbard is a skilled wordsmith who brings you on his journey in a matter of fact, uncondescending manner It s easy to slip in and feel invested in the tale, and it s definitely not for the faint hearted But you will learn so much just from reading it I can t give this book enough praise because it s difficult to formulate all of the emotions and thoughts I felt and had I recommend that everyone read this touching depiction of a father and son relationship unlike any you ve experienced before Gabbard is a skilled wordsmith who brings you on his journey in a matter of fact, uncondescending manner It s easy to slip in and feel invested in the tale, and it s definitely not for the faint hearted But you will learn so much just from reading it I can t give this book enough praise because it s difficult to formulate all of the emotions and thoughts I felt and had throughout my reading

  7. Mary says:

    A parent confronts his every notion of the world and how it operates, and what it means to be human, when he engages fully in caring for his son born with multiple deficits and in need of lifelong care Unstinting in confronting the politics infant euthanasia such as Peter Singer founder of PETA , and unapologetic in describing the rage the medical community can provoke A must read for anyone who ever dared to offer gratuitous advice to the parent of a disabled yes, that word is appropriate A parent confronts his every notion of the world and how it operates, and what it means to be human, when he engages fully in caring for his son born with multiple deficits and in need of lifelong care Unstinting in confronting the politics infant euthanasia such as Peter Singer founder of PETA , and unapologetic in describing the rage the medical community can provoke A must read for anyone who ever dared to offer gratuitous advice to the parent of a disabled yes, that word is appropriate child

  8. Sue says:

    I was lucky enough to win this book in a Goodreads giveaway It has taken me a long time to finally write my review because I have such mixed feelings about its content Chris Gabbard states soundly that he is a man of science, yet he and his wife did not insist on scientific answers during the days leading up to delivery of his son, August.I feel this is a cautionary tale, a warning to self advocate when dealing with the medical world I could not imagine not insisting of a physician s attendan I was lucky enough to win this book in a Goodreads giveaway It has taken me a long time to finally write my review because I have such mixed feelings about its content Chris Gabbard states soundly that he is a man of science, yet he and his wife did not insist on scientific answers during the days leading up to delivery of his son, August.I feel this is a cautionary tale, a warning to self advocate when dealing with the medical world I could not imagine not insisting of a physician s attendance 10 11 12 days after a baby s due date It was bad enough when his wife felt no movement, worse when the nurses felt something was wrong, and worse yet when she was having acute paiand no attending felt it necessary to check it out I grieve for the child August might have been if the delivery had been done 11 days earlier.Chris said he no longer had religious belief, yet he blindly trusted of OB GYN team when they kept putting them off Why not a sonogram at 10 days past due When having the relaxanoid pump were there no academic papers available on its efficacy The dedication and love the Gabbards gave August was amazing to say nothing of the money spent And no medical personnel was forced to take responsibility It took me a long time to read the book, the content provoked so much anger and resentment to the medical community.It seems impossible that an academic would not realize how another academic s whatever the field main interest was in furthering his development than in anything else The CYA statement that other patients results could not be revealed due to confidentiality was just that CYA case histories needn t have been given just general results of the study.August was truly a human being joyous and receptive A life lost to malpractice I sorry youand he had to suffer so needlessly Your enlightenment was up to you is enlightenment necessary to a life well lived.The book was well written I especially appreciated Chris s proper grammar the subject matter prompted tremendous anger August and Clio certainly bonded despite the many problems and had rich lives

  9. Nancy says:

    This memoir of a father s years with his severely handicapped son should be depressing but i isn t It s a story of love and, ultimately faith.

  10. Sandy Korom says:

    Difficult subject matter well narrated and examined

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